Friday, January 19, 2007
Here's a newsflash I never thought I'd hear: Yesterday, with Frances Collins by his side, Bush began lobbying for Congress to pass the long-stalled Genetic Privacy Bill, which could help protect patients from genetic discrimination. This bill, in one form or another, has been in the works for about a decade, but has repeatedly been pushed aside over fears that it might inhibit research and industry. I'm very interested to see the version of the bill they're working with now, how it's changed since its last incarnation, and whether/how it will protect patients against insurance and other discrimination. If it does, passing it would be a huge step forward for the world of tissue research, one patients rights advocates have been fighting for endlessly.